Do acesso ao tratamento para a pessoa com autismo: um estudo sobre a satisfação dos usuários das redes pública e privada em Palmas - TO

Abstract

The present study investigates access to treatment for Autism Spectrum Disorder (TEA) in Palmas, Tocantins, Brazil, focusing on the experience of families after diagnosis. The research, qualitative and descriptive in nature, uses semi-structured interviews and online questionnaires to collect data on waiting time, costs, quality of services and knowledge of public policies related to TEA. The results reveal significant challenges in accessing treatment, including long queues, financial difficulties and a lack of specialized professionals, especially in the public network. Judicialization appears as a tool for many families to guarantee access to treatment. Despite the difficulties, most parents demonstrate satisfaction with the quality of treatment once started, however there is a general lack of knowledge about public policies and laws that support autistic people. The study concludes that it is urgent to improve access and quality of treatment services for TEA in Palmas, emphasizing the importance of active participation of families in the construction of more effective and inclusive public policies.